As a patron of the HemiHelp Charity, I’m always delighted to promote the charity and help raise awareness of Hemiplegia in any way that I can.
For readers who don’t know, hemiplegia is a disability caused by damage to the brain, most often before or around the time of birth. It results in a weakness and lack of control in one side of the body, not dissimilar to the effects of a stroke. The physical severity of the condition varies from one person to the next, from someone with little or no use of one hand and a sever limp to another person who’s hemiplegia may only show when attempting specific physical activities. Half the children affected by hemiplegia have additional difficulties, both physical and mental. Every day in the UK between one and two babies are born with it, which means that up to one child in 1,000 is affected by this lifelong condition.
It is a condition that I was born with, yet for me prior to becoming an MSP I never really thought of myself as a disabled person. My parents never discouraged me from trying anything and so I tried everything, from Irish Dancing to the Sea Cadets. I was the only female on the school football team, the goalkeeper in the netball team and one of four squad members of the badminton team. Yet hemiplegia has always been a part of my life. My proudest moment so far came the day I learned to ride my bike without stabilisers, not a great achievement for most 11 year olds but for me it was the culmination of a lot of effort.
More recently I’ve had cause to bemoan the difficulties facing people with Hemiplegia. As friends will know, I’m getting married in November and getting comfortable wedding shoes has been difficult. So far I’ve bought three pairs, all of which have been unsuitable.
That is why the services that HemiHelp offer are so important. From the helpline that is run by volunteers who have personal experience of hemiplegia, the “try it” fun days that occur
throughout the country, the conferences run for parents and professionals, the pen pal system or the transition service which supports people aged 16-25 who need assistance moving from education to employment, HemiHelp is there every step of the way. The diversity of services they provide is nothing short of astounding.
As someone who has hemiplegia, it is an honour to be a patron of HemiHelp and I am all too aware of how important it is to raise awareness of the condition. Better awareness enables families and individuals to get the support they need and leads to increased understanding, allowing those affected to reach their full potential.
That is why I have decided to write this blog. The HemiHelp awareness week runs between 12-16th of October and involves a range of fun activities to raise awareness. As always, the week’s events kicked off on Mitten Monday, which encourages people to wear a mitten as a symbol of support for those with hemiplegia.
The key focus of this year’s campaign is to help people with hemiplegia raise understanding with people they interact with regularly. In particular, in key daily contexts such as schools and workplaces. To do this, HemiHelp have developed ‘My HemiCheck’ a pioneering online tool to make this easier.See My HemiCheck at http://myhemicheck.hemihelp.org.uk/
I would like to thank all of those at HemiHelp for their commitment for in making Hemiplegia Awareness Week a success and I hope you will have learnt a little more about the condition at the end of this week.
HemiHelp is the UK’s national charity for hemiplegia and its primary aim is to help each child with the condition reach their full potential. It provides information, support and events for children and young people with hemiplegia, their families and the professionals who support them.